I'm just curious, what is the red line/criteria for such political topic violations? What exactly constitutes something that is "irrelevant" or even "inappropriate" or "harmful" ?
I didn't even notice said posts, tbh.
For example, I definitely think some wider issues are completely relevant to the issue and discussion of recovery from Invega/Xeplion (paliperidone), because most of us have directly experienced (and there is much evidence) that there are wider issues relevant to our recovery.
First off, with the exception of people who quickly recover from the main side effects of depression and sexual dysfunction,by discontinuing paliperidone, there is no proven medication that can treat this or cure it, and many of us have long term and sometimes permanent issues, where clearly no treatment works, our bodies don't heal themselves in a timely manner or at all and we've been off paliperidone for a long time.
This is not an issue with no political or moral valence--it relates directly to the neglect, ethical breaches, violations of the tenets of medicine, etc. that is often occurring psychiatry.
The psychiatric profession and science have known about the problems of antipsychotic induced depression and sexual dysfunction for many many years, and in those many years, they have virtually never bothered to research a cure, much less a treatment, for antipsychotic induced depression and sexual dysfunction (and even antidepressant induced sexual dysfunction) which all can be extremely severe, sometimes permanent, in all cases, very painful and life-destroying.
There is plenty of evidence that many of them don't take the problem seriously, even when appealed to for help and action.
There are many first-hand accounts (and also documentation and undeniable proof) that many of our treating psychiatrists deny our pain and suffering, deny our problems exist, deny they were caused by paliperidone, delay or omit a diagnosis of depression/medication-induced depression and HSSD and sexual dysfunction at all, refuse to give or generate serious obstacles to us (getting) adequate care and treatment, refuse to contact outside experts for help, refuse to report our adverse side effects to the wider community, etc. I am probably missing a few points, too.
Additionally, in almost all cases that I've heard of, the prescribing and overseeing psychiatrists completely failed to warn us about the risks of developing depression and sexual dysfunction at all from paliperidone (and other antipsychotics, as well), much less the very severe forms we have. This is in spite of literature evidence and provider experience conforming that antipsychotics and paliperidone can cause sexual dysfunction, in spite of "Neuroleptic Induced Deficit Syndrome" (basically, antipsychotic caused depression) having been known about for over 30 years, etc.
This, of course, makes some sense since the official drug labels for antipsychotics downplay or omit altogether the possibility and severity of depression and sexual dysfunction risks (even though this is documented in the science as well as first-hand accounts). For the official drug label for paliperidone,
https://www.accessdata.fda.gov/drugsatfda_docs/label/2010/021999s018lbl.pdf
there is zero mention of depression and sexual dysfunction whatsoever.
So, while this is part of the reason that psychiatrists don't warn their patients, it is not a valid excuse, since elsewhere in the psychiatric science (literature and documented provider experience and affirmation) and first-hand accounts, these side effects and their risks are all confirmed.
Thus, there is a professional, ethical, medical and even somewhat political component to the issue of recovery from Invega/Xeplion/paliperidone, since the the very matter of recovery and the problems we have in the first place are the direct fault of and result of the negligence of and failure of medical duty of the Pharmaceutical manufacturers and the psychiatric treatment providers. The matter of our recovery and our treatment we receive and the help we seek in regards to that recovery is directly related, additionally, to the failures in medical duty and care and negligence on the part of psychiatric providers. Additionally, this issue simply cannot easily be separated from psychiatric researchers (especially for depression, psychotic disorders, schizophrenia, clinical treatment, etc.) and the leadership of the psychiatric profession (the American Psychiatric Association, the World Psychiatric Assocation, the National Institute of Mental Health, American Board of Psychiatry and Neurology (ABPN) and even the Accreditation Council on Graduate Medical Education). These researchers and leadership are enabling, exacerbating and in some ways, directly contributing to this problem.
Additionally, the matter of recovery is related to law, since people who have suffered this have ostensibly, in all cases, suffered personal injury from medical malpractice and dangerous drugs. This can't be divorced from recovery, because, fundamentally, this is a personal injury from medical malpractice/dangerous drugs.
Perhaps some posters were making unfounded accusations against psychiatry, or giving potentially detrimental advice to unconditionally stop antipsychotics altogether when people with psychotic symptoms need them? Or perhaps they were going off topic and talking about unrelated political issues?
The point is, I, and possibly others, am not at all trying to
make this issue political, it just
is, undeniably, to some extent. I certainly hope you wouldn't censor such valid and important arguments directly related to the recovery, to the suffering, to the facts, of all of us going through these problems and injustices. This forum and these threads are a blessing to all of us, very unique and miraculous (there are few other instances, if any, of such a collection of people reporting universally on a problem caused by a particular medication or class of medications) (if anyone knows of any other instances, please share them), and an indispensable research to all of us and the public. I hope, for instance, moderators and IT specialists at bluelight.org can not only back up these threads to a safe, secure, offline sight, but protect the site from any risks of hacking and destruction. These first hand testimonies and the active participation and presence of so many sufferers is an indispensable, crucial and irreplaceable resource, for all matters relating to our problem and our recovery.
It is somewhat a political issue, and at least, a professional and societal issue, because many of us, including myself, can confirm that we've approached and interfaced broadly with the profession of psychiatry and they have not been able to help, they have neglected their duty to help, and they've continually put us and others in harms way. Furthermore, we are also relying on the other industries, institutions, professions and disciplines of our societies to help us in various ways and to address these problems present in psychiatry.
Some of these include: Medicine, Education, Academia, Psychology, abnormal psychology, clinical psychology, forensic psychology, Social work, Social sciences, Criminology, Law, law enforcement, Journalism, News Media, public policy groups, NGOs, government, Pharmaceutical Companies and Pharmacy.
These institutions, professions, industries and disciplines play a huge role in helping people in our situation and addressing our injuries and addressing our difficulties with the problems and wrongdoings present in and committed by psychiatry. Most of these institutions, professions, industries and disciplines also coordinate and collaborate extensively with psychiatry, for good and (unfortunately) for bad. Thus, our issues of recovery from paliperidone and the injury we have suffered also relates to these said institutions, professions, industries and disciplines who in some cases, enable, endorse and/or even participate in the said ethical breaches, failure of medical duty, safety and treatment, etc. of psychiatry that has directly caused our paliperidone-induced side effects (and therefore the issue and need for recovery int he first place) and directly impacts (often negatively) our prospects of recovery (as well as related matters, like justice and litigation). Justice and litigation must be seen as an extension of recovery. Why? Because some of us never recover! Therefore, our "recovery" is actually a life-long process where we need help with our symptoms and suffering and all the circumstances related to it, like not being able to take care of ourselves, not being able to function, work, and do many human activities, etc. Thus, part of the "recovery" or "living with this syndrome, these side effects" process is attaining financial support, for instance (since we cannot work or take care of ourselves or our children, dependents, etc.), and one of the main avenues for that financial support (since we cannot work, etc.) is through damages recovered from litigation.
Also, you notice time and time again, I reiterate that I am not anti-psychiatry. I am not innately against psychiatry--I recognize that psychology, psychiatry, therapy methods and medications can help people. I also recognize that, at least in theory, psychiatry and psychology is supposed to serve the greater good, protect patients, do no harm, tell no lies and not engage in political corruption, breaches of ethics or fronting for pharmaceutical greed, and that psychiatrists are actually licensed and educated doctors, so they are also supposed to abide by many tenets of medicine, ethical standards, the Hippocratic oath, the duty of care and the obligation to do no harm, as well as the obligation to coordinate with the wider medical community, to share information, to report adverse effects to drugs, to contribute to the discovery of cures and breakthroughs, to share information relevant to the improvement and advancement of medicine and treatment of diseases, etc. (just to name a few).
To support my pro-psychiatry claim, we must note that these problems and ethical breaches are the result of bad actors and bad apples in psychiatry and related institutions, professions, disciplines and industries. These bad actors and bad apples put psychiatry and related institutions, professions, disciplines and industries into disrepute and disrupt the very mission and moral and professional standards of psychiatry and related institutions, professions, disciplines and industries. Thus, it is in the interest of pro-psychiatry efforts, that these bad actors and bad apples and their ethical breaches be addressed as thoroughly and effectively as possible. It is a service to all those people in psychiatry (and the related institutions, professions, disciplines and industries) who are upstanding, incredibly hard-working, do a lot of good, and follow the mission, purpose and moral and professional standards of their respective fields.
2-3 weeks after my sexual dysfunction went away I felt better mentally I’m telling you bro it’s gonna get better for you.
I need some hopium
